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전명희 ( Jun Myung-Hee ) - 대전대학교 한의과대학 간호학과
최경숙 ( Choi Kyoung-Sook ) - 중앙대학교 의과대학 간호학과
안세현 ( Ahn Sei-Hyun ) - 울산대학교 의과대학 외과학교실
구보경 ( Gu Bo-Kyung ) - 울산대학교 의과대학 외과학교실
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Abstract
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Purpose: This study was to obtain a understanding of breast cancer women with high risk for hereditary cancer syndrome.
Method: A micro-ethnography was used, including participation observation, open-ended in-depth interviews.
Results: Two major arguments were derived. First, When Korean women at high risk to hereditary breast cancer make a decision about whether to take a genetic test, they are strongly motivated by a desire to preserve close kinship bonds and "family love" among their siblings, parents and children. Second, Even after genetic risk assessment and counseling services, Korean women at high-risk for developing a hereditary breast cancer who have been informed that they are mutation carriers, still hold onto previous beliefs about cancer causation. Their cancer prevention strategies are constructed according to their unchanged perceptions and beliefs about cancer causation.
Conclusion: More sensitive genetic counseling program needs to be developed. Referral programs and clinical services must be attentive to cultural values and beliefs otherwise cultural attitudes and practices toward genetic counseling will not change.
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KeyWords
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유전자 검사, 유방암, 유전상담, 문화기술지 연구
Genetic counseling, Hereditary disease, Genetic screening, Breast cancer, Ethnography
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원문 및 링크아웃 정보
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등재저널 정보
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